To focus our efforts and increase our impact, we have designed two umbrella focus areas under the themes Improved Patient Outcomes and Science of Prevention and Detection.
Rising Tide Foundation for Clinical Cancer Research (RTFCCR) is a charitable, non-profit organization established in 2010.
Our primary consideration in granting support is given to truly innovative, unique, patient-centered clinical research that has the potential to positively impact the lives of cancer patients at the earliest opportunity. We provide funding for research that directly benefits patients. We do not provide funding for basic research.
Funding can be provided to any relevant institution in any country where meaningful grant oversight is possible.
Throughout this website, we have adopted the definition of patient partners as described by the Patient-Centered Outcomes Research Institute (PCORI): It includes patients (those with lived experience), family members, caregivers, and the organizations that are representative of the population of interest in a particular study.
Our guidance to the application requirements are divided in:
1 | A checklist to help applicants plan Patient Engagement in their research project
2 | Guidance on how to choose a Patient Engagement model in a research project
3 | Instructions on how to complete the Patient Engagement Plan template
4 | Questions that will be used by a patient reviewer as part of the evaluation
5 | Further information on our ambition, Patient Engagement in Research as the new norm for Rising Tide Foundation and beyond
This checklist contains some important Patient Engagement points to be considered in the application phase, during the implementation of the project, and beyond.
Research teams should carefully consider the activities that Patient Partners could undertake across the whole project lifecycle. Short-term activities are easy to define upfront, but it is more challenging to think about sustained involvement across the entire project.
In the full application, applicants will be asked to provide a detailed explanation justifying the patient role selected for the project. Please refer to our description of patient roles in our funding guidelines.
The plan should describe Patient Engagement processes during both the generation of the project application and the implementation of your project. It describes engagement – for example, how you engaged with the patient community when your research question was defined, while the proposal was being written, when it was submitted and resubmitted, and which Patient Engagement model you chose for the implementation of your project.
When developing your project budget, please ensure that adequate and realistic resources for Patient Engagement are reflected in the Patient Engagement plan and the overall grant budget request. This could include the appropriate budget for work time, staff, or contractors in patient organizations, as well as project-related pass-through costs such as travel expenses and meeting venue costs.
Please use the Patient Engagement Plan template
As the patient expert reviewer will be using these questions to evaluate Patient Engagement in your application, please ensure they are adequately addressed for all Patient Engagement activities proposed in the project.
1. How have you assessed your patients' needs, goals, concerns, or preferences when writing the application?
2. How were Patient Partners involved in formulating the research question?
3. How were Patient Partners involved in the design of the application and project?
4. Which patient role have you selected? Please provide a detailed explanation to justify this choice.
5. Is meaningful engagement of patients appropriately supported and resourced?
6. How will you evaluate the relevance of the clinical trial's results to patients?
7. How will you evaluate the patients' acceptance and relevance of the project outcomes?
8. How will the patient community be involved in the dissemination of the project results?
The importance and merits of patient involvement in research are commonly acknowledged. When patients are involved, everyone benefits because it ensures clinical and medical research work is performed more effectively and advances the delivery of what patients really need. This can only be achieved based on the collaborative identification and understanding of patients’ unmet needs. Receiving patient input throughout the design, implementation, and evaluation of clinical trials helps improve the discovery, development, and evaluation of new treatments.
In 2020, Rising Tide Foundation partnered with Patvocates to identify gaps in Patient Engagement in research and how research funding organizations could address them. The goal is to understand how funders can support the achievement of the above-mentioned research approach.
This collaboration has resulted in the development of guidance documents for public and private health research funding institutions recommending standard approaches for implementing patient involvement from the earliest stages of health-related research. It also contains guidance for funding institutions on how to involve the patient community and support the inclusion of patient perspectives on clinical and other research programs that they fund.
We are always looking to work with other public and private health research funding institutions to develop this approach further while helping patient groups collaborate with researchers. Our goal is to make this the new norm for conducting health research around the globe. If you would like to know more or are interested in partnering with us, please reach out.
Using a patient centered approach, we support research grants that enable patients to better understand their treatment options and to have a voice in trial design, thereby empowering them to be active agents in enhancing their quality of life.
Art making includes a diverse range of human activities involving the creation of visual, auditory, or performing experiences, which communicate the creator's imagination, conceptual ideas, or technical skill, intended to express how we feel and with emotional power.
The Rising Tide Foundation is launching an international Patient Arts for Health Global Exhibition to collect and curate patient art offering new insights on what quality of life means to you through your art.